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Shilp was 14 when Sahil told him he had tumors in his neck. Diagnosed with neurofibromatosis type 1 at the age of 1, Sahil had been symptom-free until the age of 9. Over the next 7 years, Sahil has endured nights of splitting migraines, wracking neck pain, and even surgery to remove the tumors in his skull. Shilp did his best to support him but  could never truly understand what he was going through; Sahil needed people that could understand his situation. But as Shilp and Sahil looked online, they found it difficult to find an accessible pediatric NF community, something that would make Sahil feel not alone in this fight. They wanted to make a change for other kids with NF. This was the birth of SketchNF. 


One Sketch at a Time

SketchNF is dedicated to raising funds and creating a network for pediatric NF patients one sketch at a time. Our mission is to empower children with NF by allowing them to share their stories and hopes through the form of art. By auctioning off these original drawings, we hope to raise money for NF research and organizations such as NF Network in pursuit of a cure.  We also envision that every person who purchases a drawing will feel a personal connection with that child, knowing that their donation has given back directly to the effort of changing their life. As our community grows, not only will the number of youth empowered by SketchNF increase, but greater NF awareness can be spread. 


As each child’s unique story is shared through art, we hope that people can better understand the impact NF has on each of their precious lives.


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Recipient of the 2023 Strauss Foundation Scholarship


Currently supported by physicians at Boston Children's Hospital, UCLA, Children's Hospital of Los Angeles, and the University of Utah!!

"The children were excited and their parents appreciated having [My Colorful Life with Neurofibromatosis] to help explain what NF means and how it affects them." - UCSF Physician

Where will our proceeds go?


+ NF Research

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