100+ families connected

140+ pieces of art collected

$28k generated through fundraisers and funding awards

40+ Clinics Using "My Colorful Life With Neurofibromatosis" with their patients

Advocated to employees of Alexion Pharmaceuticals about the importance of NF perspectives in drug development

Spoke at the Utah NF Symposium and SLC Shine a Light NF Walk

Had Utah declare May as "Neurofibromatosis Awareness Month"

Traveled to Capitol Hill to meet with Representatives and Senators to advocate for a combined $50 million in annual federal research funding.